31 for 21: Day 3 & corner view: street art

A portrait on my street this summer.

Corner view is a weekly Wednesday date hosted originally hosted by Jane, currently by Francesca. A topic is given and you can see impressions; be it in photographic or writerly in form from around the world: Jane, Dana, Bonny, Joyce, Ian, Francesca, Theresa, Cate, Kasia, Otli, Trinsch, Isabelle, Janis, Kari, jgy, Lise, Dorte, McGillicutty, Sunnymama, Ibb, Kelleyn, Ninja, Sky, RosaMaria, Juniper, Valerie, Sammi, Cole, Don, WanderChow, FlowTops, Tania, Tzivia, Kristin, Laura, Guusje, Susanna, Juana, Elsa, Nadine

31 for 21: Day 1

If she’s happy, you’ll know it.

It’s Down syndrome Awareness Month! It’s a month where those of us in the community raise awareness and celebrate our loves who happened to be born with a little bit extra. One way I like to do this is to participate in our cyber-buddy Tricia, over at Unringing the Bell‘s creation- 31 for 21.

Here’s the skinny- and hop over there to sign up if you would like to play along: You post every day, at least once day, for 31 days (each of them in the month of October, which is Down syndrome Awareness Month) on any topic, to raise awareness about Trisomy 21. 31 for 21! (Topics about Down syndrome are not neccesary, though it’s encouraged that you mention why you are taking part in the challenge at some point during the 31 days.)

I’m taking part again for my fourth year because Disability Awareness and Acceptance has always been a part of my make-up. But in February 2009, it hit closer to my home and heart. When the Quail came to us in all her glory we learned post-natally about that little bit extra residing on her chromosomal pattern in every cell of her being. And we believe that about her with all of our hearts- she isn’t lacking a thing. She’s all there. And a little bit extra.

Just like her sisters, who very few, other than the geneticists in our lives; would describe as “typical”. She’s a wonder. We’re blessed to get to witness their growth on a daily basis. That said, I don’t think I’m going to go on rants about stereotypes, or resource listings or basic Down syndrome information this year. That’s already out there. Check back in my archives to the month of October in 2009 or 2010 for my versions of that. I would reckon they still hold water. Or for more up to date information go visit our cyber-pals who are also participating in 31 for 21 and get schooled by them with a personal touch. I know I plan too and Tricia will keep a list of where to find them!

This year I’m going to continue to do something more simple. I’m going to share 31 ordinary things about my extraordinary girl. I’ve spent almost 4 years going on about what a wonder she is and have decided that my contribution to Down syndrome Awareness efforts will show the beauty of how ordinary life continues when you have someone with a little something extra in your life

Quailday: monkeyin’ around

The Quail has morphed into a monkey of late. She only has eyes for Zuzu and whatever Zuzu does, the Quail tries. I can see where this may lead us into trouble come the teenage years . For a kiddo blessed with an extra chromosome though, this skill is something to make the most of. Zuzu has wanted a partner in crime for some time now. So, as parents we can focus our attention on Zuzu’s rhythms and patterns and the Quail’s will follow. Whether it is potty time, signing time, dinner time or play time Zuzu’s desire to do something gets the Quail hopping, hollering, crawling, cart-wheeling and swinging.

The changes in the Quail are subtle. One minute she’s our baby and the next that baby is gone. A week after Sugarplum came home from the hospital and our tired eyes reopened enough to get a good look at the other girls, both Lovey and I experienced the sudden sibling growth that you hear about. The birth of a baby whisks away the babyhood of your others. Suddenly we have to heft her up, her shoes are too tight, her shirts bare her beebo, while her shorts have turned her in to a plumber.  She barely fits in the crook of our neck when we carry her to bed. I don’t remember this being so vivid when the Quail came home. Zuzu remained our lil sweet-ums it seems to me. Maybe because she stayed tucked in and nursing for the months that followed.  When Lovey suggested we take her in to get weighed though I had to remind him that considering she had just been in to the pediatrician 2 weeks before, I didn’t think insurance would cover, “I have a new baby, so my old one became a giant” syndrome.

It isn’t just her size. It’s her play, which is all about pretending she’s on her way out with a purse, a baby and a stroller. Coloring specific parts of pictures. Reading her babydolls to sleep. Settling herself into her kitchen chair without a boost from one of us and on to the couch cushions without the aid of her step-stool. Finding her suddenly with a half-crushed cereal bar in one hand and an open tub of raisins in the other. Walking in to the kitchen and noticing the little kid dishes drawer yanked open and tiny plastic pink and green bowls set out on each corner of the table.

It’s her dress. You walk into a room following a trail of unders, socks and a random shoe. You find her with one sock half on, her sister’s shorts draped part way below her knees and above her pull-up, a naked chest and a handful of wipes. She is forever swiping wipes.

And then you talk to her. She’s full of opinions. Mine. No. Momma. Da. Sister. Baby. Kiss. Cat. Yes. Barney. Shoe. Kefir. Juice. Cracker. NOOOOOOOOOOO!!!!!!! It’s subtle. It’s quiet. Well, all but No, and Barney (Ney). I can see the speech coming now. I’ve been worried if it would. I feared it might not. Now, finally there are quiet whispers of words to come.