corner view: slow

Corner view is a weekly Wednesday gathering, originally hosted by Jane, now by Francesca. A topic is given and you can see impressions; be it photographic or writerly in form, from around the world. Come see the world’s corner view via the links on the sidebar!

Well- I guess pretty much I’m slow to post 🙂 Here in the Upstate of South Carolina we’ve had more snow and ice than the state has seen in one dousing since 1993. For us- this has meant slower days spent together introducing our Southern children born of Northern parents to winter fun! I can’t help but to swell a little with pride as the baby wakes in the morning and says, “Momma- snow!” We’re on snow-day 4. And seeing as Zuzu cried at the news that school was cancelled yet again last night, I think it’s fair to say we are just a bit, well stir-crazy.

Today Lovey and I headed back to work and the girls went to celebrate Valentine’s Day with their buddies at their little school, since the big school was still closed down. And judging by the sistred squabbles echoing down the hall, the reopening of their little school came none too soon. The beauty of a snow day here though- it cleans up after itself. We expect sunshine and a high near 60 by Sunday.

Our week was spent sledding, snow-girl building, snow-ball fighting, movie watching, napping, valentine-card-signing, pizza and pancake eating and  of course snuggling. I’m tickled that I was able to walk my 41 year old self back up the sledding hill without being winded and to return to work today feeling fairly well rested. The last time I spent this much concentrated time with the girls without a daily break called “my desk job”, was last summer. The day after we came home from vacation I collapsed into an extended afternoon nap and the following workday I was so grateful to be able to just sit down for more than 15 minutes at a time even though I had to sit with my feet propped up trying to mitigate swelling and soreness from having been on them the previous week. The stamina I’ve built up with my small run/walk routine- I think this might be the biggest pay-off it’s provided.

On to the pictures of our wintery, snowy, slow days:

corner view: motion

Corner view is a weekly Wednesday gathering, originally hosted by Jane, now by Francesca. A topic is given and you can see impressions; be it photographic or writerly in form, from around the world. Come see the world’s corner view via the links on the sidebar!

Snow days have definitely become more fun since moving to South Carolina- and today’s was the first time I’ve sledded in 20 years and the first time the girls have ever sledded. Between Kite Hill sledding, hot chocolate with sprinkles, a breakfast at a local bakery of french toast made from raisin challah, bacon, a nap, a round of Candyland, a homemade pizza and movie to come, and a paid day off safe and home with my family in my flannel jammies, and a snow storm that will clean up after itself…well I’m feeling incredibly grateful, loved and safe. Perfection.

five minute friday: truth

…where a brave and beautiful bunch gather every week to find out what comes out when we all spend five minutes writing on the same topic and then sharing ‘em over here.

Go:

“NOOOOOOOOO!!!!”

Her hand reached out and slapped mine with a quick reflex reaction to my own hands reaching out to turn off the TV. We had just gotten home from work and school and I wanted everyone in the tubby to wash off the mental anxiety brought in with cold and flu season. They know the routine. This has been an expectation for years now. But still. She has to push. She has to assert. She has to insist that she doesn’t HAVE to do what I want when I want it. In my own flash of anger I smacked back at her small hand as it struck mine a second time. The moment we touched each other I felt the bewilderment of what she was feeling wash over me. I stepped back turning the TV off as I went.

“To time-out. Now. Time to cool down.”

Her voice rose in protest as big tears leaked out of her sad eyes. Her anger had flared at me in the blink of an eye. Just 5 minutes earlier she had been leaping over the piles of oak leaves in our driveway as she chattered on about how she was chosen to run for president in her first grade classroom. The time change this past week, it means it is dark and they are tired when we pull up at home each weeknight. It means we feel an urgency to get in the house and hibernate with no obligations ahead of us for the night. It means we want to eat and read books and watch TV cuddled up together on the living room couch. The order we do that in though, well it matters to me. But pretty much only to me. I want us to come home and get done the things we have to get done before we do the things we want to do. The truth is- that’s all me. The truth is- I’m not as flexible about it as the girls would like. The truth is, I have reasons why I make us do things in the order I do each night. The truth is, those reasons don’t mean much to the independent and strong-willed seven-year-old I live with. She’s spent the day, the week, the month doing what her teachers ask. And at the end of the day spent apart from Momma, she doesn’t always want to hand those reigns of independence back over. She knows she’s capable of making her own good decisions.

This give and take as she grows, it’s hard on me just as much as it’s hard on her. How to not discuss Every. Single. Living. Thing. But how to discuss enough of the things so that she knows her opinions matter. How to teach her to respect others’ authority, while not just believing everything she hears. How to know truth when she hears it and tell it from the fiction that circles her world. How to talk and how to listen.

Our anger set the baby off. She ran to me to be picked up, only to then lean in and bite my shoulder in protest. Setting her down in a second time-out spot I turned to the Quail. She with her high emotional intelligence looked at me solemnly. “Zuzu angry. “ I nodded as her sign for angry shifted to a tracing of tears down her own dry cheeks.  “Sug sad.” These weren’t questions. They were observations. Crossing my legs to sit down on the floor in front of her she leans over and wraps her arms around my neck. “My momma.”

My momma. Their momma. I hug her back and go to call the other two out of time out, turn on the water to the tub and begin again.

Stop.

31 for 21: Day 29: pause

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Go:

As I sit down on the little red ottoman in the girl’s room to help the Quail put her shoes on, I raise my voice in irritation for Zuzu to just get in here already. We offered to take the girls to the park and have spent the last 30 minutes gathering ourselves for what was intended to be a trip of that same amount of time just to burn off some extra energy.  Zuzu with her selective hearing is bounding through the house gathering the toys to bring along that she already knows we’ll tell her to put back. She’ll push anyways. Making sure that not bringing our inside toys to the park is indeed a rule and not just a guideline we’re likely to waver from given enough chipping away at it on her part.  As she prepares her already lawyerly defense as to why the little ponies have to come with us to the park, I interrupt her to tell her again to just put the toys down and put her shoes on. The Quail, having watched the look on my face and hearing the tone in my voice, turns from her spot on the floor and starts barking “No” to Zuzu. Clear what the rule is herself. Hearing my own gruffness reflected back through her tiny self I feel my cheeks heat up with embarrassment. Looking out over the Quail’s head into the dark hall I see Zuzu finally rummaging through the box for something with velcro just as Sugarplum toddles in to the bedroom, shoes in hand and plops down just about on top of the Quail.

“Shoe.”

The Quail repeats the word, now with as gentle a voice as the look she reads off of my face at the sight of the baby and starts to pull away from me to “help” her as I manage to press her own straps closed. Sugarplum shrieking at the Quail’s advances has apparently forgotten that she chose to sit so close to her oh, so helpful sister. Running away before the baby’s tiny hand can land in protest on her, the older girls start to dance around each other lit up by the twinkling of Zuzu’s fluorescent toes. The Quail starts pulling Zuzu’s arm away from the pile of pony’s to where the coats lay on the ground, urging her to finish getting ready in her own way.

I pull Sugarplum up into my lap and lean in to smell her freshly diapered self. That pause is enough to bring me back down. That warm, compliant, sugar sack weight of a baby on my lap with her little blonde wisps springing out of the tiny plastic heart barrette is enough to deflate my previous irritation. To remind me to look for the intention behind their actions, not just at each action. Last year when I would drop the Quail off at school I would ask how she was doing and hear examples of how she was always trying to tell the other children what to do. She was bothered when someone else wasn’t doing their work or following directions. They would frequently have to remind her to only worry about herself. It was usually told in the form a seemingly good-natured story.  Come the final IEP of the year though, those same tales were told with a decidedly different tone. They were explained to us as examples of her easy distraction, her being too hands-on with the other children. They were seen as problems.  Reasons why she shouldn’t be around the other “typical” children. This year though when I check in with the teacher what I’m told is what a good classmate the Quail is. How she takes care of anyone who is sad or hurt. She’s seen as nurturing and popular with her friends. How they love that about her and wish all the children were adjusting as well as she is.

I reach around and find Sugarplum’s tickle spot as she pulls away from me giggling then leans back in raising her arm imperceptibly for more tickles. Now smiling I repeat the word, “Shoe” waiting for her to parrot it back before strapping it on to her small foot. Setting her down the red shoes squeak with each toddle as she takes off out of the room hollering her sister’s names trying to catch up to them.

Turning off the light I head out to the car. Ready to move on.

Stop.

31 for 21: Day 28: without

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Go:

As soon as the backdoor clicks shut I hear a wail come up from the end of the hall. Rushing back I see the Quail sitting on the carpet with her shoe box dumped on its side around her. Big, wet tears are making tracks down her cheeks and she’s trying to force a pink and yellow flowered sandal over her jammy-clad  foot. Kneeling down beside her I start to gather the shoes back to the box. I’d spent the better part of the morning sorting and folding the seasonal exchange of children’s clothes that had been landsliding through our home  for the last two weeks. Eyeing the new mess in the hall, I was none-too-pleased.

“Quail, stop. Help me pick these up.” Rather than helping. She starts screaming what sounds like, “Cookie!” to me as she shoves my hands out of the way and continues to try to get her shoe on her foot.

“Quail. Stop. No. No cookies. Clean up.”

We continue misunderstanding each other as her frustration races my irritation to the culmination of her meltdown. Finally I get up and leave the hall. Sometimes I just need to step away. Time-outs, they are wasted on the young in my opinion. She follows me into the kitchen continuing to chant cookie and grabs the plastic pumpkin bucket off of the kitchen table. Shoving it up into my hands she tries again. “Cookie.”  Peering into the pumpkin. I repeat the name for it, “Pumpkin?”

“Yeah. Pump-kin. Daddy. Sug. Zuzu. Me!” She bangs her small hand against her heaving chest gathering the pumpkin up with her shoes and runs to the backdoor.

Not cookie. Not angry. Not out-of-control. Not trying to make a mess. Just not able to articulate in her panic, her desire to be included.

When Lovey got ready to go to market this morning, I had gone up to the attic to find our trick-or-treating buckets because I was fairly certain that we only had two to go between the three girls this coming week. One pumpkin. One Elmo head. Zuzu had dressed Sugarplum in a striped and pumpkined sweater and in all her baby-cuteness I had grabbed her, Elmo and the camera to photograph her quickly in the morning light before strapping her into her carseat. Unbeknownst to me, the Quail had seen the buckets and my camera and had thought they were going trick-or-treating. Without her. The day before she had been sick and the girls and Charlie had gone to the school’s fall festival while she and I stayed home.

“Did you think we were going Trick-or-Treating?”

“Yeah. Boo!!!!” She waggles her fingers scarily at me and we both laugh. I explain that Lovey and the girls were just going to the store. They would be back and we would all go the pumpkin patch later.

“Me. Boo.” Satisfied that she was not being left out. She moves back to the living room to resume her Barney-marathon. That’s the thing these days. I still repeatedly underestimate how much of the commotion around her she is taking in and processing. Whatever her sisters are doing. She wants to be doing. Be it- going to school, to the park, to the market or pumpkin patch. If Zuzu is twirling through the yard in a rock-star costume. The Quail is only a beat behind. If Zuzu gathers her backpack to head out the door. The Quail is making sure hers is packed with her Bookflood Book and folder. If Zuzu grabs her swimsuit to fill up the little plastic pools, the Quail grabs the towels. All for one. One for all. Sometimes it just takes me a while to catch  up to speed.

Putting the last shoe back in the box and returning the plastic pumpkin to the kitchen table I reach into the fridge for the tub of Tollhouse dough. Suddenly I’m exhausted and hungry for cookies.

Stop.

31 for 21: Day 24: belong

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Go:

“Quail-eee! Quail-eee!” her small chants echo down the hall as I carry her from the bedroom in the morning light. During the week Zuzu and I are gone by the time Sugarplum wakes up. On the weekends though she and I are usually the last to rise. The older girls wake before the sun most days and if I’m lucky, Lovey does too and corrals them in the front of the house. Grasping the ancient glass doorknob leading from the pantry into the dining room, I feel it thread loose and come out of the door into my hand as I try to open the swollen rectangle from its frame. Swearing under my breath I hand the knob to the baby who promptly drops it with a clank to the wood floor. As we ease through the rooms where the other children sit, it’s unclear who is more delighted to see whom. The girls jump up and start hollering each other’s names with enough gusto that one would think they had been separated by weeks and miles rather than soft snores and blankets. It is clear however that I need coffee and I attempt to hand the baby over the girl’s clamoring hands into the lap of Lovey. They pounce, Zuzu leaning in too close to press her hands into Sugarplum’s solemn face.  The baby protests the release from my hip, reaching for me and hollering over the Quail’s approximations of the words describing her morning:

“Momma. Sleep. Sug. Sleep.” She signs sleep as she says it and pats the air down with her hands indicating they were trying to be quiet while mom and baby slept.

“Maddie. TV. Me. Paa” Indeed, Netflix is set to Zuzu’s latest obsession, My Little Pony and the Ipad shows a handwriting app open to the letter H. Lovey puts aside his laptop and stands up with the baby heading into the kitchen to warm a bottle for her. We trail after him the Quail chanting, “Eat. Drink.”

Sugarplum peeking back at us starts chanting again over his shoulder, “Quail-eee! Quail-eee” now safely up high on perch in his arms to call to her sister without risking being sat on in excited response.

The relationship between these three is something to watch grow. As the baby becomes more verbal, she has managed to learn the Quail’s name before Zuzus. Yet, she often seems understandably more comfortable with Zuzu’s handling of her than her exuberant four-year-old sister’s attempts to “mother”. I would guess it stems from the fact that the two younger girls spend their mornings together when Zuzu and I head out into the day. She physically hears the Quail’s name more frequently than Zuzus, so it comes more easily to her.

Yet there is no denying the bond that threads the triad together. When the Quail first moved into the one-year-old room at her pre-school she started spending her recess time out on the sandy playground just a fence away from her idolized big sister. In turn, Zuzu would frequently bring her own gaggle of girls to the fence and holler for the Quail if she wasn’t immediately there. This group of girls would keep their eye on the Quail and were loud and quick to flag down a teacher at the impending threat of a big kid snatching the Quail’s toy or playing too roughly with her. Often when I would arrive at the end of the day to pick them up my heart would be warmed with stories of how they would hold hands through the fence during their recess-time.

Then one day one of the gaggle girls approached me at pick-up eyeing my very pregnant belly.

“Ms. Cole- what if Zuzu likes the new baby better than the Quail?”

I stared at her silently, reminding myself that this was an innocent only-child’s question. Not something to be read into with a deeper meaning and concern regarding sibling relationships when a disability is involved. This was not a question of the Quail’s worth in our family, the community, our home or this school.

She simply wanted to know if it was possible for one sibling to like another more.  

“I don’t know dear. Zuzu loves the Quail AND she’ll love Sugarplum (Zuzu had already named her this by my third trimester). Sometimes sisters get along and sometimes they need some time apart.”

My voice trailed off as the friend raced back to the swings that had opened up and Zuzu came running towards me letting me know which of the therapists visited the Quail that day at school and how she had said hi to them and wanted to know when they could come to babysit her.

This past week though, a new chapter in their story started to unfold mirroring the past. As I stood holding Sugarplum to have her face wiped down her teacher told me how Sugarplum now comes to the fence and hollers “Quail-eeee!” AND “Zuzu!!” until she catches their attention and they run in tandem to her to reach their small hands through the metal into hers.

These girls, they love each other. Their relationship is tender and volatile and intimate and easily taken for granted for now. They don’t question who loves whom best and who can do what. They slow their own pacing naturally to catch each other up in their play. They carry one another, physically and emotionally. They fight. They resist. They love. They depend.

They just are.

Stop.

31 for 21: Day 21: (3) on the 21st: A Blog Hop

photo-11-e1374422584166

 

This monthly blog hop is a community project created by one of my pals Meriah over at With a Little Moxie.

One truth (about Ds/our lives with Ds): The fact that your child has Down syndrome is not a reason in and of itself to not have any more children.

When word got out that I was pregnant with Sugarplum, not all the responses were what one expects to hear in response to a pregnancy announcement. Don’t get me wrong, there certainly were plenty of folks that were thrilled for us, and sent their congratulations. And for the most part, that’s what I remember, the gracious generosity surrounding the welcoming of Sugarplum. But, then came the warnings, from “well-meaning friends”.

“Just so you know, don’t expect everyone to be happy for you. Since you already have a child with special needs, some people think it’s not good that you are having another.”

I probably shouldn’t put that in quotes. Those weren’t the exact words. It was the sum of the message. Behind it were thoughts that we were crazy to have another, because couldn’t we already see- one child was born with a disability. Why would you want to risk that again?  Other’s thought we were selfish- poor Zuzu already can’t possibly get the attention she needs with all of the Quail’s needs, and now you are going to add to that? And what about the Quail- considering all you do for her how could you possibly have time for another child. Surely you’ll quit work to stay home with your children now!

Those statements, those are all speculation, opinions and worry. They aren’t truth, at least not mine.

The truth is we have little spare time in our day. The truth is our days would be jam-packed if the Quail didn’t have Down syndrome- that time spent going to and practicing what we’ve learned in therapy- well we would fill it with something else. Those visits don’t bother the Quail- she enjoys the activities in therapy, the therapists, the time out of her day going somewhere with her Mom & Dad.

The truth is, we worried too- but the fact is- you find the time to do what you need to do- and whatever might be taken up in terms of one on one time from a child when a sibling is added to the mix, is more than made up for in love.

This is our truth- our three girls- they love each other. They play together. When one of them rises in the morning they ask after the others. When one of them is sick and misses a day at school, the others want to know where she is and go straight for her the minute they return home. When one of them has a solo activity, the others pipe up with an eager, “Me too”. This past week we had Zuzu’s first grade parent-teacher conference. Zuzu is, well to put it mildly- “in charge” most everywhere she goes. Sometimes this comes across as leadership, sometimes as a Bossy Bessy doll come to life. But the fact of the matter is, she’s good at taking charge. She’s still working on finessing her approach, but she’s good. And a large part of that comes from being the eldest in her Sistred and having been given the opportunity to help out with her sisters in a variety of ways. No she’s not obligated to do any particular thing for the Quail (or Sugarplum for that matter). But she sees the intrinsic reward in being a helper. Her teacher told us unprompted-

“I’ve seen Zuzu with her sister- she’s so attentive and kind and patient- that carries over into the classroom- it’s what we see with how she is with the other students- she is good with them. If I need help- I know who to ask.”

This isn’t a one time compliment either. Her dance teacher used to praise, “If I can get Zuzu to her mark- the others follow, so I focus on her. She’s my helper.”

And last year in Kindergarten, “I always give the substitute teacher Zuzu’s name, if I’m out she could run the class.”

And in her daycare, “I hope you don’t mind, but I’ve asked Zuzu to help teach him his site words.”

And Zuzu, when she tells me her version of the above examples, it’s with pride, self-confidence and expectation. Like any seven year old- she has her moments where she’d like no one to touch her toys, her clothes, her homework. She has her tantrums, her whines, her complaints. But more and more, that’s not the sum of her, more and more I see that she is showing the world what she is capable of and what she knows about how we treat others.

The impact on Sugarplum is yet to be seen, but to date I can say she’s the most light-hearted of all of us. The one quickest to smile, the most content, the most laid back, equally strong-willed and equally happy to take part in her sister’s antics.

The truth is, all three girls are an integral part of our family.  Our lives are chaotic, crazy busy and we have more to do than time to do it. And I wouldn’t have it any other way. Except, maybe with a few more hours of sleep and a few more home-cooked meals….

 

One tip (information on something related to Ds/raising a child with Ds/or just parenting in general).  That’s not to say that you shouldn’t pay attention to the impact of disability within a sibling group. You should, the truth is that it isn’t a given that it is a bad thing. How each child responds to the fact of disability in their home though- that is something to help them understand and work through if you notice they are struggling. There are a lot of resources out there- but one of the most helpful is the work of Dr. Brian Skotko. Below are also some links to research regarding siblings and Down syndrome.

http://www.down-syndrome.org/research-highlights/2043/

https://www.ndss.org/Resources/Caring-for-Your-Family/

http://www.sheknows.com/parenting/articles/981881/siblings-of-children-with-down-syndrome

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31 for 21: Day 20: Boundaries

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Go:

I roll my eyes to the ceiling as I hear the squabble start down the hall.

“Momma!!!!! The Quail spit at me! I wasn’t doin’ ANYTHING!!! And she just spit! MOMMMMMAA!!!!”

Sighing, I pull my flat-iron through my hair once, twice, three times. The sound of feet running in two different directions fills the office.

Just as I see the ruffled edge of the Quail’s nightgown through the cracked bathroom door I hear another door slam and Zuzu scream in frustration. Leaning my head through the door I look the Quail in the eye and raise my finger to my lips. She answers in return with her own raised finger, “Shhhhhhh….” Too late, the baby cries out from our room and we all stand still as statues pretending we weren’t the one to make that last sound that roused her. I want to tell Zuzu to stop storming. I want to tell the Quail to never spit again. I want to tell them both that it isn’t even 7 a.m. yet and I haven’t even finished one cup of coffee. I want to drink three cups of coffee. I want to send them all back to bed and start over.

Instead I reach out and the Quail’s hand locks in mine automatically. “Come on, come say sorry to your sister.” I feel the slight pull as she considers refusing and the release as she decides a stern Momma’s attention is better than none at all and follows me silently back to her room.

When to intervene and when to let them work it out is a riddle to me. I talk too much. I say the wrong words. I say them too loudly. I say them too often. I nag. I coddle. I cajole. I threaten and I warn. I take away privileges. I step in. I turn away.  I say I’m sorry. I instruct them to do the same. I lift them up and I let them go. I mother. I parent. I boss. I love. I’m at a loss.

Zuzu, she’s bossy with her sisters. And she’s loving. Her voice has turned from hard edged to charmingly coaxing when they aren’t following her pied piping these days. She takes the model of her kindergarten and first grade teachers and plays out her own school days in little dioramas of her toy-filled bedroom. The change is noticeable. I’m fairly certain it hasn’t come from my instruction either. She’s learned the power of honey over vinegar and is harnessing it in her own time. Still ever so delicate in heart, she’s not one to be mean. Bossy. Instructive. In charge. Yes. Mean no. When someone takes her toy, calls her a robot, says they don’t want to play My Little Ponies or Barbies, her heart is truly crumpled and she pulls back with a sour look until she can find her way to melt back into your side.

The Quail on the other hand. Is usually the first to follow the teachings of Zuzu. Where Zuzu goes, she goes. What Zuzu does, she does. What Zuzu eats, she eats. What Zuzu dresses up as for Halloween, she dresses up as for Halloween. On the other hand. She’s not one to be told what to do. That decision to take her sister’s lead- that’s all her. Should Zuzu take her toy. She shouts No and takes it back. Should her sister’s turn on the swing go on too long. She stares her down till she “chooses” to give her a turn. Should someone say she can’t come in the sandbox to play , she pulls their pigtail down to the ground and sits on them. Should her sisters include her in what they are doing, her grin cracks wide open lighting up her eyes and the hearts of those around her. She may not always be able to articulate exactly what she wants, but she is crystal clear in what she loves and hates.

And then along came Sugarplum. This sweet and quiet plum of a baby woke up one day this summer and came into her own. What was once a quiet, serene, easy-going little sweetie-pie was no longer willing to give up her toys and books at the whim of an older sister.  Much to everyone’s surprise one day when the Quail sat down on the pink Dora couch next to her and reached over to pluck the book she was looking at from her pudgy hands, her own cheek was met with a small slap and a quick, “No!” The pause in the room was palpable as Zuzu looked up from her Ramona & Beezus chapter book and the Quail let go. Even Sugarplum seemed surprised at the effect of her small might. 

Strong-willed they say. In equal yet different parts. The Venn diagram of what that means in their relationship is still being worked out among them.

For now, we kneel down between this triad and issue reminders that we don’t hit, we don’t spit or bite or sit on our sisters. We are kind and gentle and helpful to our family and friends. That it is ok to be angry, and to be sad and to be scared and frustrated. But it isn’t ok to take it out on each other or to take what’s precious to one another away. We ask for a turn. For now, we hug and sign our apologies and move on with our day. Until the next storm comes, the next squabble erupts; the next rascaling match needs to be broken up and sorted out.

Stop.

31 for 21: Day 17: understand

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Go:

“Momma- you can’t bring a beard on the field trip tomorrow. Here’s a milk instead.” I was cleaning up the kitchen while Zuzu packed our lunches for our first field trip together with school. She’s been bustling with excitement that I was going to chaperone for a couple of weeks now and this evening had gotten serious with me over the do and don’ts of good parent chaperoning in the audience of her beloved teacher.

“Beards?”

“Yes- beards- you know- what you and Daddy like to drink.”

Ah yes- those. Good thing she thought to mention it, considering the risk of her mother bringing alcohol on her first school field trip with her first grader.

And with that a new entry in the family dictionary was born. You know the family dictionary, the words that your family uses regularly for everyday occurrences, certain that the rest of the world does as well? Ours includes the likes of Sistred, rascaling, story-time manners, monstering, monster-spray, seat-cart, cramera, and now beards. These were brought into our days mostly by a pint-sized Zuzu. The one whose chatter starts before the sun comes up and before she could actually speak. As Sugarplum has now entered the pterodactyl stage of toddlerhood (You don’t refer to 9 months on as that in your home?) she’s taken her sister’s lead and jumped headlong into silly strings of jibberish that can only be described as having been modeled after Brad Pitt’s lilting British Pikey accent from the movie Snatch. Much like when I saw that movie, sub-titles, would be helpful. To date phrases that have been puzzled out like “I don’t know.”  and “It sure does!” in response to my clucking are a wonder to hear in this little person after having adjusted our expectations to the apraxic speech development of the Quail.

While we live with and understand the motor-planning difficulties that the Quail works hard to push her thoughts through into our understanding; we’ve become so accustomed to apraxia’s theft of our child’s words that I find myself still routinely doubting the permanence of the words the Quail and Sugarplum contribute to our days. Early on I breathed in a small circle of words from the Quail’s sweet mouth to my ears, “Ove you Momma.” One time. Over three years ago. As she laid her head on my shoulder while I carried her sweet sugar-sacked body into bed. And still I wait for those words to come again.

I know they will. Eventually.

Eventually she will speak them in the same manner that other non-apraxic 46-chromosomed little ones do. For now though, we create ways for our family to understand each other in less traditional means. With naming and telling of the Sistred’s antics to show them both uniquely and as a whole to ourselves and our community. Through rascaling-bear- cub sister’s antics where half-nelson’s are gentle enough for half-pints. Through story-time manners where there is always a free hand to lasso the chubby leg of our littlest pterodactyl as she trustingly edges her grinning self over the cliff of the bed-rail- again. To tickle-monstering sneak-attacks when a grown-up sits unawares blogging or philosophizing. To gingerbreaded- monster sprays that protect the nights and dreamlands of the biggest sister who is still little enough to be protected by her imagination.  To patience and room for sisters to teach and help each other as one explains how to buckle into her seat-cart when another one insists on doing it themselves after pushing away their frustrated parents hands. With both silly and paused hugs offered up for the stills and stories captured and shared from Momma’s cramera . 

With arms circled tight around my neck as a wriggling four year old, chants with soft pride- “My Momma, My Momma” again and again after months of articulating work with her Daddy on her /m/ sound and is answered with, “I know. I love you too.”

Stop.