Fave-O-Lit Friday: Oz Squad

Dear friends & family;

With the recent onslaught of media coverage surrounding the word retard. Sarah Palin has unwittingly become the Momma Bear defender of all children with Down syndrome. It is important to our families that she be educated in disability history and why it is important that she not politicize THIS particular issue. It is important that she use her public platform to defend people disabilities and help others who will listen to her undrestand that the word retard hurts all of us deeply. That it doesn’t matter who you are, please do not use this word and please understand that it hurts our precious children when you do.

I belong to an advocacy group that works to educate people about Down syndrome. We are sending an open letter to Mrs. Palin- a non-partisan one…- to help her understand how important it is that NO ONE be allowed to use the word & that when she speaks, she represents all of our families and and our children that have Down syndrome regardless of politics because she is such a public figure. Please come join us in reaching out to her by signing our letter.

Thanks so much for your help!


corner view: wisdom from an elder

The woods are lovely, dark and deep,
But I have promises to keep,
And miles to go before I sleep,
And miles to go before I sleep.

-from Robert Frost, Stopping by Woods on a Snowy Evening

With the recent onslaught of media coverage surrounding the use of the word retard and retarded I find myself extremely saddened by the public’s defense of the appropriateness of this word as a synonym for anything they find annoying or ridiculous. Why people are insistent on their defense of their gratuitous use of this word when they are made aware of the power of it to hurt and strip the dignity of individuals with intellectual disabilities, is beyond me. I would have expected at the point in which it garners so much attention ;that people outside of the community of those of us who either have an intellectual disability or know and love someone who does; that it would have been a simple choice to just not say it- that it would have been clear that there is no appropriate time to use it or any other hate speech. The continued defense of people’s “right” to hurt others through this word is so disheartening to me. As Mr. Frost says- I do have promises to keep- to my children and teaching them to be kind to others; and miles to go before I sleep- there is still much work to be done in advocating for the rights of all people.

Gratitude Journal

1. an on-line community

2. new friends

3. a cold being just a cold

4. too many clearances at work

5. time to take pictures of my little ones

6. the bridesmaid dress order being placed

7. the arrival of the shoes for the wedding

8. a neighbor sharing their lasanga

9. a friend getting a well deserved promotion

10. pigtails on a baby!

11. making valentimes

12. a 3 year old learning to spell

14. a 3 year old’s giggling excitement at the most ordinary of things

15. calling Lovey in the middle of the day just to say I love you (I guess Stevie Wonder had some insight!)

16. advocacy

17 turbinado sugar & sea salt coated dark chocolate almonds!

18 snow

19. pictures of the lil ones in snow

20. goody bags made

21. naps

Fave-O-Lit Friday


Dear Mrs. Palin, It’s not ok for anybody to use the R word. Your dear friend Rush included. I know you know this. Please don’t let politics affect your ability to defend your dear little one. Spread the word to end the word Mrs. Palin. Use your power for good. Sincerely, This Momma

PS: I pledge and support the elimination of the derogatory use of the r-word from everyday speech and promote the acceptance and inclusion of people with intellectual disabilities

Quail Day: mmmmmmmmawwwwhhhhhhh!

Last week in speech therapy we were playing with the Quail and I randomly picked up a baby doll and said, “Kiss the baby!”…and….she did! And then I said it again, and she did it again, and again, and again! Monique and I cheered and cheered! Then I leaned in and said, “Kiss your momma!” and grinned widely 2 inches from her face. She just leaned back gazing stoically at me. Um, not so much. The next morning I pulled out the same babydoll and we did an encore performance for Lovey. I also pulled out a toy baby bottle and handed it over with a “Feed your baby!” directive and she did as well! It was precious. We had a few more encores and now she seems to be sooooooooo past that.We’ll keep at it though. We have also had a few isolated signings of Mama! Miss Quail has definitely become more animated as of late. There was just something so clear in her response to the directive to kiss the baby. She has been waving hesitantly as well as offering up a few quiet consonants. Then one night, oh; about 3 am we discovered, or rather she discovered her preferred audience: a sleeping family that is quiet long enough for her to get a vowel sound or two in edgewise. For the last 2 weeks we have listened bleary-eared to her practicing her run of vowels with a few random z’s, g’s, d’s and b’s for a good 1/2 hour show around 3 am each night. She isn’t hungry, or upset, just chatty, loudly chatty. Fortunately for us, her sister sleeps through it. Unfortunately for us, we don’t. Of course as soon as Monique settles in across from her each week for speech therapy, she clams up. She tends to have a similar response to both OT and PT. Leave her alone with her toys and she’ll drop them, pick them, transfer them, pull them out, put them in, lift them overhead and happily gum them. She’ll lower herself from sitting onto her belly, roll from front to back and back again, rotate around in a circle to get a toy….but as soon as the therapist or one of us starts actively trying to engage her in one of these activities we are often met with either silent and firm resistance or active batting away of our entreaties with her pudgy little hands. Now that I think about it, it is not unlike the nursing sessions. She is definitely clear that she will do what she wants, when she wants. There will be no forcing or bending of wills here…

Meanwhile, Momma is here still waiting for her kisses….

corner view: repurposed

How would you use these items?

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