31 for 21: Day 6: gratitude

1. a most excellent bounce house party

2. Coffee Underground Coffee

3. Strossner’s purple chocolate monkey cake

4. little tiny monkeys

5. The Quail running to the windown Sunday morning crying Bounce!!!

6. Getting to bounce

7. The after party

8. GNO

9. The Quail’s “be charmed by me” face, cause we are

10. breakfast with a newly minted 6 year old

11. Dinner, frozen yogurt and a toy shopping trip with a 6 year old

12. Hello Kitty Cupcakes for the class

13. Ugg boots on a 6 year old

14. Tearing up over Knuffle Bunny Free

15 a two-toothed, semi-sitting 6 month old!

16. a new book club

17. Lovey’s chocolate cake and chocolate buttercream frosting

18. a note from a mentor

19. a note from an author

20. making a connection between the two

21. fall family time

Zuzu turns 6!

Best. Party.Yet.

I still remember Zuzu’s first birthday and our multiple attempts to make the day memorable for her that no matter how hard we tried still felt forced and fumbling. On the day itself she went to school like any other, but being good working parents we brought tiny cupcakes to her class and gathered the little ones around to sing. She stared at us with her hands raised into their up demand and cried a little when it was met with a cupcake thrust into it. She peered at us even more curiously when we didn’t gather her things and head out to the car but instead sat down at the little round toddler tables and handed out cupcakes. She rose again and again, tugging first at my shirt, and the at her dad’s with growing concern at this break in routine. In the middle of all of the rising, and tugging, and resettling her cupcake was stolen by a neighboring child who had no trouble whatsoever at this change in routine.

Later that weekend we gathered a Publix cake frosted colorfully with the Baby Einstein catepillar and joined some friends at our local zoo and then the Whole Foods eating area to share the cake. Again, a nice outing, but not really “us”. We tried later to tie some balloons to her chair and sing with a lit mini-cake for the perfect photo op. My lens was met with cries for yogurt and to nurse, shreiks from the balloon wafting into her line of sight and further tears over the frosting that landed in her tired eyes as she swiped at them.

The next year w did better with a party at her local park. Nervous glances were still seen though as we sang to her over her Elmo cake. The year after that we even managed to coordinate the party favors with the help of a local friend’s handiwork that crated little felt capes to fly the children around the park before diving into a homemade Wordgirl cake. Her favorite character to date.

The next year we bounced at a local pizza place and after that we went with a gymnastics party which was a good call for the rowdy, multi-aged crowd we tended to include.

But this year, this year the party finally felt like us. We rented a bounce house that luckily for us would remain in our yard for the full weekend. We had a cake decorated by our favorite German Bakery with purple frosting and her beloved Momo’s ( her monkey lovies) decked out in pink hairbows. The party was made to order and Zuzu was tickled. We managed to also dodge the issue of too many presents with such a crowd by instead requesting each child bring a book to exchange for a new book. It was a beautiful fall weekend and by far my favorite of the celebrations of all things Zuzu. Happy Sixth year my dear- you are so very loved!

Happy 6th Birthday dear Zuzu! 31 for 21: Day 5

Happiest of Birthdays dear one.

Happy Birthday dear Zuzu! Today is your 6th birthday.

We are so blessed to be your family. I feel like our bond as a family has only grown tighter over this past year.  The older you get the more we discover “you”. You have had such a constant sense of self. A sparkling, go-getter personality that has been trying since day one to show itself. I feel like now you are coming in to your own! The changes and growth in you over this past year are so phenomenal. You sparkle with intention and confidence now. Yet the thing that remains most constant is your tender heart. There is not a mean bone in your body. You just want to love and be loved. That is so clear now in every move you make, every word you speak and every activity you jump in to. You dive in with open arms and a full heart.

You are in public school now and absolutely blooming with your love of community, learning and making your own choices.

Once again you asked to do a “birthday interview” and write your own post. Later on this month I’ll share my gratitude for you and your series of celebrations- but for now- as you wish!

Zuzu’s Favorite Things:

Favorite TV Show: Wordgirl

Favorite Video: Barney Christmas

Favorite Netflix: My Little Pony

Favorite Breakfast: pancakes & waffles

Favorite Lunch: yogurt stick

Favorite Dinner: quesadilla

Favorite Fruit: grapes

Favorite Veggie: crunchy carrots

Favorite Dessert: gummies- a whole pack of them like I take in my lunch

Favorite Drink: apple juice with no water in it

Favorite Color: pink & purple

Favorite Restaurant: Ring Restaurant (El Jimador- she calls it that because they once had candy rings)

Favorite Sport: basketball

Favorite Toy: The Barbie Reagan gave me

Favorite Song: The Birthday Cheer that says Cha, Cha, Cha and Happy Birthday in it

Favorite Book: My Little Pony

Best Friend: Olivia, Lucy & Averi

Favorite Day of the week: Friday because it is almost a home day

Favorite Time of the day: morning and night because I get lots of hugs from my family

Favorite Season: Winter because we get a Thanksgiving and Christmas break

Favorite Outfit: My cupcake dress

Favorite Family Vacation: To the mountain hotel that has the pool where I can swim in 5 feet with my swim noodle (Flat Rock NC)

Favorite Family Outing: going to the library

Favorite thing ever: my family

Favorite place to go: To Clemson Elementary. We have lots of fun in Mrs. McCain & Mrs. Cambpell’s class

 

31 for 21: Day 3 & corner view: street art

A portrait on my street this summer.

Corner view is a weekly Wednesday date hosted originally hosted by Jane, currently by Francesca. A topic is given and you can see impressions; be it in photographic or writerly in form from around the world: Jane, Dana, Bonny, Joyce, Ian, Francesca, Theresa, Cate, Kasia, Otli, Trinsch, Isabelle, Janis, Kari, jgy, Lise, Dorte, McGillicutty, Sunnymama, Ibb, Kelleyn, Ninja, Sky, RosaMaria, Juniper, Valerie, Sammi, Cole, Don, WanderChow, FlowTops, Tania, Tzivia, Kristin, Laura, Guusje, Susanna, Juana, Elsa, Nadine

31 for 21: Day 1

If she’s happy, you’ll know it.

It’s Down syndrome Awareness Month! It’s a month where those of us in the community raise awareness and celebrate our loves who happened to be born with a little bit extra. One way I like to do this is to participate in our cyber-buddy Tricia, over at Unringing the Bell‘s creation- 31 for 21.

Here’s the skinny- and hop over there to sign up if you would like to play along: You post every day, at least once day, for 31 days (each of them in the month of October, which is Down syndrome Awareness Month) on any topic, to raise awareness about Trisomy 21. 31 for 21! (Topics about Down syndrome are not neccesary, though it’s encouraged that you mention why you are taking part in the challenge at some point during the 31 days.)

I’m taking part again for my fourth year because Disability Awareness and Acceptance has always been a part of my make-up. But in February 2009, it hit closer to my home and heart. When the Quail came to us in all her glory we learned post-natally about that little bit extra residing on her chromosomal pattern in every cell of her being. And we believe that about her with all of our hearts- she isn’t lacking a thing. She’s all there. And a little bit extra.

Just like her sisters, who very few, other than the geneticists in our lives; would describe as “typical”. She’s a wonder. We’re blessed to get to witness their growth on a daily basis. That said, I don’t think I’m going to go on rants about stereotypes, or resource listings or basic Down syndrome information this year. That’s already out there. Check back in my archives to the month of October in 2009 or 2010 for my versions of that. I would reckon they still hold water. Or for more up to date information go visit our cyber-pals who are also participating in 31 for 21 and get schooled by them with a personal touch. I know I plan too and Tricia will keep a list of where to find them!

This year I’m going to continue to do something more simple. I’m going to share 31 ordinary things about my extraordinary girl. I’ve spent almost 4 years going on about what a wonder she is and have decided that my contribution to Down syndrome Awareness efforts will show the beauty of how ordinary life continues when you have someone with a little something extra in your life