Quail Day

I’m just a little bit in love with this girl and her party dress. I am still ruminating over the lost tiny tiara though. Maybe it will turn up one day. In the meantime she is enjoying her status as a 1 yr old. During therapy she is already acting so much more mature! Well at least she is now talking to her speech therapist and pleased as punch that swinging has been added into her OT’s repertoire. She also in the last few weeks has apparently decided what the world needs now is more love and thus has started doling out hugs left and right. To her classmates, to her therapists and most adorably to her sister. She will holler and holler until she gets Zuzu’s attention, at which point Zuzu will lean in for a hug and proudly pronounce, “Momma, she just needed a hug!”; as the Quail grips on to her with all her might and drools happily into her sister’s hair. The acoustics in the bathroom are especially pleasing for this ongoing reenactment and I managed to capture a bit of the filibuster on film last night. Right now they are about as in love with each other as two sisters can be. On the morning of the Quail’s actual birthday I started softly singing Happy Birthday to her when I saw she was awake. Zuzu broke in and silenced me insisting she needed to do the honors. She finished the song off with, “I love you my sweet sister, you are the best baby ever!” It brought tears to my eyes, as the last time she insisted on serenading her sister with Happy Birthday was the weekend after we brought her home from the hospital. She would alternate Happy Birthday with the Barney theme- I love you, you love me, firmly insisting we all sit in a circle and hold hands while she finish out the concert. I tried to capture it on film then, and it was hormonally deleted. So I’m pleased as punch to have a chance to recapture the sentiment- still as lovely and true as a year ago. I wish this joy and delight in each other for them throughout their lives.

corner view: street photography

Happy 1st Birthday Quail!

Saturday we had the Quail’s first birthday party at our home! It was lovely and sweet and a good showing of our dear local friends joined in the festivities. The day was not without it’s follies: the tiny tiara was lost before it could even be worn, the cupcakes were turned upside down  by a certain 3 year old in her eagerness to share, about half of the invitees were unable to attend. The birthday girl was at her refluxy-prime from the beginning and asleep when her guests arrived and that certain 3 year old later “helped” her sister unwrap her gifts before a certain Momma could write down who the giftees came from. But all-in-all it was a lovely day. The weather was beautiful, the house was clean, the children were chipper, our dear Justine was engaging, the pizza’s were on time, the balloons and singing and frosted-Italian-creme-violet-topped-masterpieces all made the Birthday girl smile and chirp with joy! And the girls in their matching green party dresses were as lovely as the early spring day itself!

Thanks to everyone who helped out! We love you all and feel so blessed to be part of such a rich communityof friends and family!

Gratitude Journal: In honor of a year with the Quail

1. Making Zuzu into an awesome sister

2. Being an awesome sister yourself

3. the little hands sweeping behind you gesture you make when you are excited

4. the way your arms go up and you get all wiggly in anticipation when one of us put a receiving blanket over our shoulders

5. the courage you gave me as a mother

6. making us into a family

7. bringing me back to the kind of person I’ve always been

8. your confidence in your rightful belonging in our hearts, our family, our lives and on my hip

9. showing me the beauty in your unique face and way of being

10. your giggles, grins and gripping little hands

11. the community you bonded us too

12. your Buddha belly

13. your calm wise gaze

14. the way you follow your sister and cat around the room

15. your ability to have your cake and eat it too (you insist on being held by one of us and then immediately focus on the other)

16. for showing me there is more than one way to parent a child

17.  the reminder that we all have abilities and gifts

18. your joy and exuberance as you accomplish each developmental milestone

19.  the way you nuzzle into our necks when we hold you

20. the soft cooing sounds of you telling us what’s on your mind

21. our future- I can’t imagine our lives with anyone other then you, exactly how you are. I can’t wait to see and be with the person you are becoming and already are.

I can’t believe a year has flown by already dear girl. We all love you to itty bitty pieces and know that you are perfect exactly as you are. You make us so proud and we look forward to many, many family days together in our lives. We have so much to show you and do with you. We have learned so much about life, love and humanity already in this brief time together. This world is getting better every day- and we promise to continue to make it a happy, safe place for you to be able to spread your wings in. You are such a beauty. Thank you for gracing and blessing our lives.

Fave-O-Lit Friday: Oz Squad

Dear friends & family;

With the recent onslaught of media coverage surrounding the word retard. Sarah Palin has unwittingly become the Momma Bear defender of all children with Down syndrome. It is important to our families that she be educated in disability history and why it is important that she not politicize THIS particular issue. It is important that she use her public platform to defend people disabilities and help others who will listen to her undrestand that the word retard hurts all of us deeply. That it doesn’t matter who you are, please do not use this word and please understand that it hurts our precious children when you do.

I belong to an advocacy group that works to educate people about Down syndrome. We are sending an open letter to Mrs. Palin- a non-partisan one…- to help her understand how important it is that NO ONE be allowed to use the word & that when she speaks, she represents all of our families and and our children that have Down syndrome regardless of politics because she is such a public figure. Please come join us in reaching out to her by signing our letter.

Thanks so much for your help!

http://ozsquad.blogspot.com/2010/02/dear-sarah.html

corner view: wisdom from an elder

The woods are lovely, dark and deep,
But I have promises to keep,
And miles to go before I sleep,
And miles to go before I sleep.

-from Robert Frost, Stopping by Woods on a Snowy Evening

With the recent onslaught of media coverage surrounding the use of the word retard and retarded I find myself extremely saddened by the public’s defense of the appropriateness of this word as a synonym for anything they find annoying or ridiculous. Why people are insistent on their defense of their gratuitous use of this word when they are made aware of the power of it to hurt and strip the dignity of individuals with intellectual disabilities, is beyond me. I would have expected at the point in which it garners so much attention ;that people outside of the community of those of us who either have an intellectual disability or know and love someone who does; that it would have been a simple choice to just not say it- that it would have been clear that there is no appropriate time to use it or any other hate speech. The continued defense of people’s “right” to hurt others through this word is so disheartening to me. As Mr. Frost says- I do have promises to keep- to my children and teaching them to be kind to others; and miles to go before I sleep- there is still much work to be done in advocating for the rights of all people.