I hate cancer.

Cancer is something I will never understand. Today we lost a dear, sweet, fierce and precious warrier in our world. Sweet Lois. I’ve never met her in real life. Yet here I sit crying real tears for her family. No family should have to go through this. Miracles- they should be the precious gift savored by children. Her story, her family, her spirit have inspired me. I hoped for her to go on. I pray for peace and strength for her family as they have to make their way.

I’ve said it before and I’ll say it again. Join the National Bone Marrow Registry today in honor of dear Lois.

What would you do if someone you loved was diagnosed with Leukemia? Could you swab your cheek maybe? It’s really that simple to see if you could be the one to save the life of a small child whose family loves them dearly. 

 Be The Match Foundation   helps to connect those in need of bone marrow transplants with potential matches.

Could you consider joining the registry?

Or helping to spread the word?

Help grow the registry. Click on the link above. They’ll send you a kit for free. You swab your cheek and mail it in. It’s that simple. And it could mean the world to a waiting family.

Make a post, spread the word. You never know whose life you will touch, whose baby you will help to make it to survivorhood.

No parent should have to face this fight. But far too many do. It is estimated that the risk for leukemia for young children is that 1 in every 2,000 will develop this disease.

Why does this disease in particular worry me so? Because the risk of leukemia in children with Down syndrome narrows to 1 in 95. Far too many of the dear families in our sweet community have been faced with these statistics.

Far too many of the dear families in our sweet community have had to learn the language of pediatric oncology.

Your bone marrow- it could save the life of a child. Please visit www.marrow.org and add yourself to the National Bone Marrow Registry. The more people that join and help spread the word the closer our children are to growing up and seeing adulthood- a simple wish. One that we should all be able to have.

You will be dearly missed but never forgotten Lois. You’ve touched our hearts and there you will stay.

Charity Week: Do you Know What I Know?

Said the shepherd boy to the mighty king
Do you know what I know?
In your palace warm, mighty king
Do you know what I know?
A Child, a Child
Shivers in the cold
Let us bring Him silver and gold
Let us bring Him silver and gold

Do you know that there are sweet orphans in the Ukraine that need you to care? They are given up at birth because they have a little bit extra. 1 little chromosome too many. When I think of these darlings I can’t help but fret that what if my Quail hadn’t been born to me hear and now in a society that sees her value and supports me in all sorts of ways to support her in being all that she can be?

Remember earlier this month when I talked about sweet Olga needing a home- and the miracle being led by Patti? Well she has inspired such love and kindness to the tune of over $12,000 for sweet Olga‘s adoption grant! Word on the super hi-way is that a family is seriously considering adopting Olga and bringing her into her forever family.

In that mysterious way that miracles have, someone somewhere was so moved as to donate enough money for Patti to purchase a new IPad and start a whole new giveaway for a sweet muffin of a girl- Kareen.

So go here and read what you simply must do to help give this dear girl a chance at life. Like Olga, she is nearing the age where she will be transferred to a mental institution. The statistics read that approximately 85% of these children die within the first year. Please contribute in our efforts to not have Olga or Kareen become a statistic.

Please give what you can.

Please help spread the word.

Please pray for families to come forward for these sweet girls.

Please go tell Patti how incredibly proud of her you are for all her cheerleading efforts and goodwill.

And hey- in the process- you might just find yourself the winner of a brand new IPad! Can’t beat that can you?

Drawing is Christmas Eve.

Were you wondering what to get me for Christmas or my upcoming birthday in February? How about a donation to one of these sweet children at risk of institutionalization?

That my friends and family would be the gift that keeps giving.

Charity Week: Do you Hear What I Hear?

Said the little lamb to the shepherd boy
Do you hear what I hear?
Ringing thru the sky, shepherd boy
Do you hear what I hear?
A song, a song
High above the tree
With a voice as big as the sea
With a voice as big as the sea

I hear families loving their sweet babies who are sick. What would you do if someone you loved was diagnosed with Leukemia? Could you swab your cheek maybe? It’s really that simple to see if you could be the one to save the life of a small child whose family loves them dearly. 

 Be The Match Foundation   helps to connect those in need of bone marrow transplants with potential matches.

Could you consider joining the registry?

Or helping to spread the word?

Help grow the registry. Click on the link above. They’ll send you a kit for free. You swab your cheek and mail it in. It’s that simple. And it could mean the world to a waiting family.

Make a post, spread the word. You never know whose life you will touch, whose baby you will help to make it to survivorhood.

No parent should have to face this fight. But far too many do. It is estimated that the risk for leukemia for young children is that 1 in every 2,000 will develop this disease.

Why does this disease in particular worry me so? Because the risk of leukemia in children with Down syndrome narrows to 1 in 95. Far too many of the dear families in our sweet community have been faced with these statistics.

Far too many of the dear families in our sweet community have had to learn the language of pediatric oncology.

Your bone marrow- it could save the life of a child. Please visit www.marrow.org and add yourself to the National Bone Marrow Registry. The more people that join and help spread the word the closer our children are to growing up and seeing adulthood- a simple wish. One that we should all be able to have.

The odds of surviving Leukemia are so much better in this day and age. We are so blessed that medical technology and the compassion of people like you have made this possible. For a lot of people survival means finding a match. Please register. Please donate. Please spread the word.

Come meet some of our dear friends who are fighting for the lives of their sweet children.

Meet Lois…

and Zoey…

and Ella…

and Emily

There are far too many like them. Let’s do what we can to fight this disease. Let’s give these children a chance. Please stop by and visit our friends to let them know you are thinking of and praying for them. They will appreciate the kindness.

 

Charity Week: Do you See What I See?

Said the night wind to the little lamb
Do you see what I see?
‘Way up in the sky, little lamb
Do you see what I see?
A star, a star
Dancing in the night
With a tail as big as a kite
With a tail as big as a kite

I see 10 inches gone! I was inspired by a male coworker who grew his hair out to give it to Locks of Love this past year. Since joining the Down syndrome community my eyes have been forever opened to our sweet family members in our community that are cancer warriers.

1 in 96 children with Down syndrome develop leukemia. Thankfully some little bit of magic on that 21st chromosome also makes them the warriers that they are and they tend to fare better than their counterparts without that little bit extra. So in this season of giving- in honor of the sweet babies in our community- I’m giving my hair up for charity.

Think about doing the same. It’s so easy- just go to locksoflove.org to read how. There are other organizations out there such as Pantene Beautiful Lengths as well that make wigs for adults. And I believe they will take an 8 inch minimum. I realize that a lot of the wigs that Locks of Love do go to children that have other disorders rather than having cancer. But I wanted the hair this time to go to the children.

Could you do the same?

 

 

 

Let’s help a family out people!

I blogged about this earlier. I donated to sweet Olga. I put it up on facebook. And you know what- so did A LOT of other people. So many people have decided to be a part of this Christmas miracle that sweet Olga went from having $78 in her adoption fund to over $10,000!!!!!!!! I am floored by the generosity and kindness. And now I sit and wait with baited breath. Praying that a family will step forward and take these two gifts- the gift of this money- and the gift of this sweet dear heart of a girl.

I thought I was done spreading the word. I have mentally committed to myself that if I win the IPOD Touch giveaway- well I’m going to use it to try and raise money for another of the sweet Reece’s Rainbow children.

In the meantime, while we wait for the thursday deadline of Patti’s giveaway to come. Some of my most very favorite folks have decided to blackmail us into continuing to spreading the word about Olga! Yes that sneaky mother Courtney has decided to withhold Pudge and Biggs stories and pictures until she has received 100 comments and additional help to spread the word and help Olga.

Usually I don’t give in to ultimatums. Except when I agree with the cause of the hostage taker. So please go donate to Olga, go read about the miracle over at Patti’s and be a part of it.

It’s simply awe-inspiring what we can do when we are brave enough to care.

Oh- and when you are done- please go over to Courtney’s and post so we can get our favorite squib stories back!

Let’s help a child out & you could win an IPOD touch in the process!

Is that not win-win?! Go here. Meet Patti and see the lovely donation she is making and the awareness and love she is spreading in the process. She has committed to helping sweet Olga pictures here find a loving home. In just a day- she has raised thousands of dollars! Read the post, read her earlier posts about orphans in Eastern Europe and what we can do to make one child’s life- well a life. It’s heartbreaking knowing that these dear angels are sentenced to a life in a crib at best and death at worst without loving families stepping in. If you donate to Olga and leave Patti a comment- you get a chance to win an Ipod Touch. She also wants you to help spread the word- and you will earn additional chances. It only takes a couple of minutes. Please help!

corner view: take a different perspective

Try embracing ability rather than fearing disability.

In this country most children with Down syndrome are typically able to get the care and love they need to thrive. This past week there was a disturbing story going around Facebook of an infant with Down syndrome in Arkansas. He and his twin brother were intended to be adopted at birth. Sadly only one infant went home. The other was given a DNR order.  Since then, advocacy groups have stepped in and the DNR order has been lifted. Please join those of us in the Down syndrome community as we pray for the continued health of this little darling as he waits for a homestudy-ready family in Arkansas to step up and bring him into his forever family and that he gets the medical intervention that is needed in order for him to live.

Thankfully, this story is the exception here in this country. In Eastern Europe and other parts of the world this isn’t the case.  As November draws to a close and with it National Adoption Month; I thought I would take this week’s corner view as an opportunity to share a wonderful organization with you. An organization that takes a different perspective on the value of the lives of children born with Down syndrome in countries where that is seen as a burden rather than a blessing.  Reece’s Rainbow is a non-profit organization that helps children who have Down syndrome (and other disabilities) internationally find their “Forever Families”. During November and December they sponsor an Angel Tree where you can see pictures of some of these sweet children and donate to their adoption fund. This money will go towards the costs of funding an adoption for one of these sweet children. If you donate at least $35 before December 15, you will receive an ornament with a picture of the child you donated to on it.

I wrote about this topic last year. And as I went through my archives this year to look at it again I was tickled to see one of the little angels from this tree, Mallory as one of the pictures I had high-lighted again. Dear Sandra and her lovely family have joined the ranks of forever families and brought her home just this past season. You can read about their journey here in adopting Mallory and Peach. There are so many lovely families that have given the gift of a forever family and a chance at life itself for these children. Jennifer’s, Lisa’s, Lacey‘s and Michelle’s to name a very small few.

Visit these blogs, consider adoption or donating to one of these sweet children. Let your heart and eyes see how different life can be if you just choose to see it that way.

Here are just a few of the sweet angels needing forever families:

See what’s going on around the world:

jane ianbonniejoycekimkaytrinschritvafrancescastate of bliss cabrizetteisabellejaniskarijgylisecateotlidortebsophiemcgillicuttysunnymamadaanibbpienduzzkelleynninjasammitheresacherry bjulietteshokoofehcolegrey lemonlucylainelynnskywritingannadoritconnyl´atelierkamanaanne marierosamaríavictoriatikjewitjuniperannabelandrea valeriemerel soissesmlle paradiscacahuetewander chowbarbaraemilytallynadinedon flowtopssusannataniadanaingridtzivia lollipopmarimezza

Can you help fight Leukemia?

September is National Leukemia and Lymphoma Awareness month.  Could you please consider making a donation to The Leukemia & Lymphoma Society?

Or to the Be The Match Foundation  ? This foundation helps to connect those in need of bone marrow transplants with potential matches. Could you consider joining the registry? Or helping to spread the word?

Help grow the registry. Make a post, spread the word. You never know whose life you will touch, whose baby you will help to make it to survivorhood.

No parent should have to face this fight. But far too many do. It is estimated that the risk for leukemia for young children is that 1 in every 2,000 will develop this disease.

Why does this disease in particular worry me so? Because the risk of leukemia in children with Down syndrome narrows to 1 in 95. Far too many of the dear families in our sweet community have been faced with these statistics.

Far too many of the dear families in our sweet community have had to learn the language of pediatric oncology.

Your bone marrow- it could save the life of a child. Please visit www.marrow.org and add yourself to the National Bone Marrow Registry. The more people that join and help spread the word the closer our children are to growing up and seeing adulthood- a simple wish. One that we should all be able to have.

The odds of surviving Leukemia are so much better in this day and age. We are so blessed that medical technology and the compassion of people like you have made this possible. For a lot of people survival means finding a match. Please register. Please donate. Please spread the word.

Come meet some of our dear friends who are fighting for the lives of their sweet children.

Meet Lois…

and Zoey…

and Ella…

and Emily

There are far too many like them. Let’s do what we can to fight this disease. Let’s give these children a chance. Please stop by and visit our friends to let them know you are thinking of and praying for them. They will appreciate the kindness.

A peach of a mama…

Have you met Ds Mama? Well she’s expecting- 2, not twins- but heart-made sisters that will grace their lives with much beauty and joy. Peach & Mallory are two sweet girls from Eastern Europe that are on their way to their forever family courtesy of Reece’s Rainbow. Ds Mama has committed to bringing these girls home and has started raising funds to get them here as quickly as possible.  The painting noted here is part of her fundraiser. Head over to read the details and consider participating.

Ds Mama is a wonderful resource, advocate and friend in our community and we are thrilled that she has decided to take these two beauties into her loving home. These girls couldn’t ask for a better mama!  She’s been a real blessing in our family’s lives as we’ve navigated this new world. She’s a peach of a mama- so it’s only fitting that she become the mama for Peach- and sweet Mallory too. Bless you on your journey dear- we’ll all be following along

Angels we have heard on high!

 

Won’t you please consider donating to an adoption grant fund for a child who needs a home? Reece’s Rainbow is a non-profit organization that helps children who have Down syndrome internationally find their “Forever Families”

Our family is donating to Jeffrey I chose him to post about on picture alone. I know it might have been more helpful to have picked a child who there was more of a background to tell you all about. In Eastern Europe it is not uncommon for babies that are born with a diagnosis of Down syndrome to be taken to orphanages. They are able to stay in their baby homes typically until the age of 3. Around that time the paperwork is begun to move them into institutions. While some can still be adopted after that time, it does not appear common. That’s where Reece’s Rainbow comes into the picture. This organization was started by one mother who had the good fortune to give birth to a child that has Down syndrome 6 years ago. Since that time she has become a passionate advocate for children and families of children who have Down syndrome. Her organization started raising money and assisting families in the process of adopting children that have Down syndrome. In other countries these children are typically viewed as outcasts and unable to learn and set away from society and the stimulation and love they desperately need. Before my life as a mother I used to work with adults that had a variety of developmental diagnosis and had lived the majority of their lives in institutions. Once they were able to move into their own homes and begin receiving one-on-one attention in a loving environment- they did learn. They began doing the everyday household activities that they were believed to not be capable of- it turned out they were just never given the same opportunities to learn and grow and be loved that you or I had growing up. So I can testify that if an adult with a diagnosis of the like of severe to profound mental retardation can grow and learn- then the possibilities of a very young baby or child that may have an accompanying diagnosis of mild to moderate mental retardation along with Down syndrome is fully capable of living a wonderful life- just like any of the rest of us- if, IF they are given that blessed opportunity.

Now- that is where you come into the picture. Won’t you consider adopting one of these beautiful children? Is that too much?- how about contributing to an adoption grant fund that will go directly to a specific child’s waiting Forever Family, that is just trying to raise the money to bring their little one home. That is what our family can do at this time and is doing. As I typed I kept going back to their page debating picking another child to post about that there is more information to share- a personal touch that might draw you in and make you more likely to give a few dollars. But in order to do that I would have had to remove sweet Jeffrey’s picture and I just couldn’t bring myself to do that. Maybe by the time you go to their website there will be more information about him- maybe not- but maybe in the process you will read about another little child and that will touch your heart and spur you on to donate- or adopt. So I decided to add a few more children’s pictures in hoping one of them would touch your heart’s as well. The Christmas Angel Tree Adoption Grant Fund highlights specific children that you can donate too. We chose Jeffrey because he is noted to be at high risk for institutionalization due to his age (these children are noted in red) and he had very little money currently in his adoption fund.

We are so blessed in this country to have so many great resources. The understanding of Down syndrome and the potential of a person born with this diagnosis really lies in the care they are able to receive. If they are encouraged, and expected to do well and given all of the love, health care, education and engagement that a typical child is- then their future is wide-open just like any of the rest of your children. The future of children with Down syndrome has really changed in the last 10 years. With the help of Early Intervention and adequate medical care- these children are more like your other children then they are different. They have conditions that can be medically managed- they are not outcasts that have no potential as they are viewed in less developed nations.

There are a number of families in our community like Lisa’s and Michelle’s that have read about these dear children and have made the leap of faith to begin their adoption journey to bring a new heart into their families. Go read their stories and get to know these amazing families.

Please consider helping a child find their Forever Family before they are faced with being institutionalized for the rest of their life. Some of these children need the care our medical system is able to manage and some don’t have any health care needs. Please at least take the time to come over to Reece’s Rainbow and meet these little darlings and consider making a donation.

And one last plea to my Corner View friends. The number one thing that prevents a child from being donated to or adopted is a bad picture. If the child was having a bad day and that is what was captured- that is all there is for any potential family to go on- and more often than not- that causes the child to be overlooked- for another child who was having a better child and maybe was a tad more photogenic. You,my corner view friends live all over the world and are amazing photographers. Would you consider contacting Reece’s Rainbow to see if there might be something that you could do- to see if it might be possible that you could help take good quality photos- so that one instance in time is not what is standing between a child finding it’s Forever Family  or living a life of institutionalization? What a difference a gift of your time and talent could make in the life of a sweet child.

Happy Holidays and Season’s Greetings to all- Please let your heart be filled with the joy of these children and their potential.

From our family to yours- with love and hope.