We have a standing baby! I was checking in on little LC and watching some of the video footage of her and thought we might try their neet standing trick going up from sitting on a little stepstool. And I’ll be a monkey’s uncle (or a little bird’s mama!). It worked! I’m not sure exactly what it was that made it sooooo very easy to get her to push up to standing but it was an awesome feat. And my eager display of pride made it a quick favorite of the Quail. After a few times of trying that we went ahead and started from laying down, to letting her pull up on my hands to sitting and then to pull up to standing! Brilliant! At PT on monday we showed off our new trick and happily impressed our PT. I was complaining that when Jodie (EI) gets the Quail in standing she just pops her up from her lap, but when I try she usually ends up with a faceplant deep in the rug and less than pleased. So we practiced and right away he noticed that the issue was the position of her feet and the need to have them planted firmly on the ground before applying a slight pressure to her thighs to “pop” her up off my lap. Easy-peasy- once I realized what the problem was. As he pointed out- it’s stuff like that, that keep him with a job! She was even able to stand bracing herself at a bench and also over a basket and soon enough forgot about the new feet of standing and moved back into playing like she does it from that angle all the time! We’re so proud!
Monthly Archives: January 2010
corner view: what we are wearing
babies…inside, on & out, in my womb, in my heart and thankfully in my arms for the last 4.5 years.
Like Jane I have many favorites, my j.crew boyfriend jeans, a couple of cashmere sweaters, my pearl earrings and a handful of lockets and silver necklaces, my hair down, a black tank, a pea and other woolen coats, a series of Cloud 9 boots to work or Keens on the weekend, a white linen shirt that is blessedly better to wear in its naturally wrinkled state and a slightly lemony or gingery scented lotion behind the ears. The clothes are all in the primary spectrum between white and black. Very few vibrant colors grab me with staying power year after year. The bag over my shoulder is the always in style Medela PISA; the bags under my eyes- not so much anyones style of choice.
Usually what wins out on a good day is that freshly showered look. You know- actually having taken a shower? Each and every day? Oh what a glorious dream! More likely is freshly brushed hair, a slightly milky scent and a quickly wiped off patch from whatever substance one of the small ones has regurgitated back on me in one form or another during an early morning cuddle. The daily scent on a chaotic day is more than likely last night’s pesto, the color scheme is the orange and white fur of Chula from her early morning cuddle with which ever warm fuzzy I set out in supposed preparation for the day. My style? definitely waffles from late baby to early preschooler: AKA tired momma
Check out the stylish Jane and her stylish followers:
jane, ladybug-zen, ian, bonnie, esti, sophie, cele, modsquad,caitlin, joyce, ani, kim, natsumi, epe, kaylovesvintage, trinsch, c.t., jeannette, outi, ritva, francesca, state of bliss, jennifer, dana, denise, cabrizette, bohemia girl, isabelle, amber, a girl in the yellow shoes, mister e, janis, kari, jgy, skymring, elizabeth, allison, lise, cate, crescent moon, erin, otli, ida, caroline, lisa, dorte, kimmie, la lune dans le ciel, nicola, malo, vanessa, britta, april, b, kyndale samantha, karen, kristina, goldensunfamily, sophie, janet, mcgillicutty, aimee, sunnymama, jenell, britta, juanita, pamela, inna, daan, myrtille, cris, ibb, jodi, gillian, travelingmama
Zuzu Day- Monkey see, Monkey do
Momma Monday: It was thiiiiiiissssss BIG…..
Gratitude Journal
2. frankness, cusioned with tenderness
3. options
4.Publix sourdough bread
5. Publix Mojo chicken!
6. Motherwit!
7. a pediatric nurse as a babysitter!
8. a therapeutic recreation student hanging out with the Quail!
9. Kellie
10. Dance class!
11. “Momma, Girls are princesses and boys are bears!”
12. wheezing being widdled away
13. rapid-flow
14. Signing time!
15. Matching stripey sisters!
16. Invitations to go out!
17. being healthy enough to go out!
18. little kid birthday parties
19. a functioning heart
20. a straightforward cardiologist
21. a cheerful baby
22. a clever 3 year old learning to spell
See what I saw Saturday
Fave-O-Lit Friday: Kimya Dawson
Is to wake up right next to you
Second thing that we have planned
Is to kiss both of your hands
Third thing that we’ll do today
Is look you in the eye and say
I love you sweet baby, I love you sweet baby
I love you more than anything
Then we’re gonna change you
Then we’re gonna feed you
Then we’re both play peek-a-boo
Then we’re gonna read to you
Then you have more milk and have some water
And we’ll smile at you and tell you we’re so glad that you’re our daughter
Then you’ll fall asleep on daddy’s lap
We’ll watch MacGyver while you take a nap
When you wake up we have more plans
Say good morning baby and kiss your hands
Then you’re gonna make a pee
In your little green potty
Then we’re gonna eat our lunch
Mash avocados for you to munch
Then you’re gonna nurse again
Then we’re gonna call our friends
Then we’ll dump out all your toys
Singin’, dancing, make some noise
Then we’re gonna take a walk
Down the street to the park
We’ll play on the see-saw, play on the slide
You’ll get tired and rub your eyes
Then we’ll go home for more nursing and sleeping
Bouncing and nursing and waking and peeing
Crawling and bouncing and dancing and hitting
Nursing and peeing and kisses and seeing
You’re an amazing human being
You’re an amazing human being
You’re an amazing human being
You’re an amazing human being
Then we’ll all cuddle in our bed
You’ll nurse to sleep, we’ll kiss your head
Good night sweet baby, I love you sweet baby
I love you more than anything
Good night sweet baby, I love you sweet baby
I love you more than anything
The first thing in our list of things to do
Is to wake up right next to you
Second thing that we have planned
Is to kiss both of your hands
Third thing that we’ll do today
Is look you in the eye and say
I love you sweet baby, I love you sweet baby
I love you more than anything
I love you sweet baby, I love you sweet baby
I love you more than anything
I love you sweet baby, I love you sweet baby
I love you more than anything
Quail Day: Home & Heart
Cardiology check today…
Well the word on the street is we will most likely be paying a visit to our friendly cardiac team in Charleston SC when the Quail reaches 3-5 years old. She has a ventricular septal defect that is membranous and moderately sized. She may have an atrial defect as well- that is unlcear and while if it was the only thing they wouldn’t be talking about repairing it, if and when they do go in they will repair that as well. It appears there may be a flap over it and he used another term- which escapes me right now to describe what it could be.
But the VSD has had some tissue growth around it since birth. Originally our cardiologist said that the tissue growth was a good sign that the hole may be closing itself. The tissue growth essentially forms what looks like a windsock on echocardiogram. So with this growth the size of the hole itself is not what matters. In fact if the tissue wasn’t there we most likely would have needed her to have open heart surgery already. The end of the windsock is what they refer to and measure as the effective hole. That is the size that allows blood to go back the wrong way. And the size of that hole is only 3-5 mm…they think. He said repeatedly to not be shocked if the hole either the one in the septal wall or the effective one ends up being much larger. He’s good at explaining things in lay terms and used the example of trying to take a photo of a sheet that is blowing in the wind and has a hole in the middle. Then try to guess the size of that hole based on the accuracy of the photo. With the wind blowing the sheet around it is hard to tell the actual size of the hole.
For the last couple of visits it hasn’t appeared that there has been new tissue growth and the effective hole has been measuring 3-5 mm. There is still a chance it will close on it’s own- so he isn’t willing to say for sure yet that she will need it. We’ll have a couple more visits to check it out But if she remains as she is, and so far she has had consistent findings at her appointments thus far; the plan will be to go in and close the defect when she is 3-5 years old. He said things would be much more smooth (that probably isn’t the right word), but it’s’ better for her to be a little older to go through the surgery. On the other hand. adults with Down syndrome have a fairly high frequency of developing pulmonary hypertension between their 20-40s and closing the hole could have a positive effect on that. I’m not clear if it would prevent it all together or cause it to be milder. I often find myself nodding along feeling perfectly confident in what I think I understand then when we leave and Lovey and I start discussing it we find we both had slightly different understandings. At any rate; it’s due to that possibility that would be the reason to go in and do the repair when she’s little- not too little, but not too old as to cause any unnecessary trauma mentally or emotionally for having gone through it.
I’m a good midwesterner transplanted here in the south. For me it’s mentally easier to accept this as a worst case scenario- that indeed OHS is in her future in a few years and be delightfully surprised if the hole closes on it’s own and she doesn’t need the repair. I’d rather that, then to hear optimistic bullshit, that is put out essentially to make me feel better and not worry all the while he would know that she will need the surgery.
The good news of the day is that her past bout of illnesses over the last 3 months didn’t do any damage to her heart. He thought they sounded like bad luck that she got sick and not cardiac related. He said he didn’t see any real reason why she shouldn’t be in her little school. He said the Ds and her heart condition aren’t more likely to cause her to get ill- it’s just that when she does catch something she will act or be sicker in response to something like a cold then a child that doesn’t have those 2 issues. And it may be harder for her to fight off an infection so they may last longer. I was glad to get that affirmation after the last few months leading me to think we should invest in a timeshare in the hospital pediatric ward!
So that’s all for now- it’s time to go put the small ones to bed and be grateful to have everyone here and together. I think I might also go ask Lovey if he heard the doctor say the same thing I think I heard!
corner view: Holiday
If you go back to the middle of December you will see Holiday pictures of our festivities. It was a much quieter, subtle time then originally intended. We had every intention of spending the Christmas holiday in the Midwest with Gramma and Grampa. We had been planning for months. The plane tickets purchased, the Christmas Dresses ready and waiting, the tree set to be decorated and we had begun reading children’s books about Christmas, winter and snow. And then along came life…both girls were sick and Zuzu was technically contagious until the day after Christmas. So we cancelled our travel plans and settled in to be merry in our own home. Our friends and family were sweet enough to expedite their dresses and giftees for the girls and dear friends invited us to spend Christmas Day with them nearby. The girls are young enough that they weren’t too disappointed. They were excited to see their tree get decorated, to don their dresses here and open packages and wish family and friends a Happy Christmas over the phone. Zuzu asked Santa for a candy cane, Andy Williams sang Jingle Bells, there was freshly grated nutmeg for the eggnog. Christmas Eve we had a family dinner and read Twas the Night before Christmas together before bed. Christmas Eve morning we remembered to pick up the bobka and stollen from The Village Baker. The stockings were hung and filled by Santa Claus with the likes of chocolate and musical toothbrushes. Zuzu, ever the pragmatic soul, was pretty concerned by the lack of toothpaste in her stocking to go along with the brush. Lovey noted this was the first Christmas ever that he did not receive toothpaste in his stocking as well. Santa duly noted his lapse in judgment and practical gift giving. Last year we noted the need for a new holiday movie to entertain Zuzu while we prepared breakfast. What a difference year makes- she managed to entertain herself with her stocking pretty and what-nots and we barely heard a peep out of her all morning. After our long-winter’s naps we headed over to our friends for dinner and dessert. We whole-heartedly enjoyed their company and cooking as always. The girls were excited to play togther in their holiday dresses and we were happy to relax while they entertained themselves. The rest of the weekend was a series of cleaning up, late mornings and lots of naps. Oh and listening to repeated messages from Orbitz about the cancellation, after cancellation of each and everyone of our flights other then the initial one out of town. Apparantly, had we been on our flight as planned, we would have spent a good, long visit in Minneapolis- with no way to get to our final destination and no way to return home via planes, trains or automobiles. We are sad our health and weather didn’t provide the happy, family, white Christmas with extended family, but we are grateful for our little group being together and finally on the mend.
The photos above were the 2 centerpieces of our holiday. One group of my on-line friends whom I have had the good fortune to bask in the wisdom of since 2005 had an ornament exchange. I had the luck of the draw in getting to give to dear Marlo- whom I had the pleasure of actually meeting in person earlier this summer during a trip to Lovey’s family’s home. I had a wonderful picture of her lovely daugher and Zuzu walking together and had it turned into an ornament. I couldn’t have thought of or provided a more meaningful gift for one of these wonderful momma’s if I had rigged the draw myself! The ornaments above were only half of an extremely loving and thoughtful package provided by sweet Joanna in Canada. We had the privilage of sharing maternal time- our youngest small ones were born within weeks of each other. Her oldest- who is a little older then Zuzu was the MC for the gift giving extravaganza and chose a most excellent purple sparkely ornament for Zuzu as it is her signature color. Upon opening the package, Zuzu informed me, ” Oh good, my friend Kitty-ara gave me my favorite color purple entament” Translation:” Chiara gve Zuz a purple ornament! The Quail recieved…yup you guessed it- a Quail ornament- so glittery, charming and lovely- much like the quail herself! For Lovey and myself there was pure Maple Syrup from a local farm- which I might add is one of Lovey’s primary food groups- and for me some vampire fiction- as Joanna knows of my obsessive reading of the Twilight Saga shortly after The Quail’s birth. I feel so blessed to have such a thoughtful friend who knows us so well- yet bizarrely hasn’t even actually met us in person!
It was a lovely holiday and I can already feel the plans weaving in my settled brain for next year!
Come join in the festivities around the world via corner view as hosted by our lovely Jane:
jane, ladybug-zen, ian, bonnie, esti, sophie, cele, modsquad,caitlin, joyce, ani, kim, natsumi, epe, kaylovesvintage, trinsch, c.t., jeannette, outi, ritva, francesca, state of bliss, jennifer, dana, denise, cabrizette, bohemia girl, isabelle, amber, a girl in the yellow shoes, mister e, janis, kari, jgy, skymring, elizabeth, allison, lise, cate, crescent moon, erin, otli, ida, caroline, lisa, dorte, kimmie, la lune dans le ciel, nicola, malo, vanessa, britta, april, b, kyndale samantha, karen, kristina, goldensunfamily, sophie, janet, mcgillicutty, aimee, sunnymama, jenell, britta, juanita, pamela, inna, daan, myrtille, cris, ibb, jodi, gillian, travelingmama